Fabian Hamilton signs Motor Neurone Disease Charter
Fabian Hamilton MP has signed the Motor Neurone Disease (MND) Association's Charter in recognition of the rights and priorities of people living with MND and their carers. MND kills five people every day, with half of people dying with 14 months of diagnosis. This terminal disease can affect any adult at any age. There is no known cure. Unfortunately, this condition is still little understood and this contributes to many people with MND not receiving the care and support they need. The MND Charter has been launched with the aim to change this.
Fabian said, "I am delighted to sign up to the MND Charter. I have seen the difference good services make to the lives of people with MND and believe everyone with this devastating disease should be supported to maximise their quality of life and die with dignity."
Many people with MND die without having the right care, not having a suitable wheelchair, not having the support to communicate. When living with MND, one month waiting for an assessment or a piece of equipment is like a year in most people's lives, especially as half of the people with MND, die within 14 months of diagnosis. The MND Charter, which has already received endorsements from the Royal College of General Practitioners (RCGP) aims to ensure people with MND and their carers have access to timely and appropriate information, care, services that allow them to maximise their quality of life and ensure they are treated with dignity. What matters most is that people with MND and their carers can access the right care, in the right place and at the right time. The needs of people with MND and the priorities for good care as set out in the charter need to be recognised and respected.
To visit the MND Association web site - Click here
To sign the charter yourself - Click here